Lived Experience
Lived Experience
My name is Hailey Walker and 32 years ago I was born with a rare form of Myelomeningocele Spina Bifida and I am here to tell my story.
I was never supposed to be walking and was going to need extensive help all throughout life, but with the amazing pediatric team I had, I beat the odds. I am walking, graduated school with honors, played sports and was able to live a full life - until I fell through the cracks of our healthcare system while transitioning from pediatric care to our adulthood care system.
It has been a very long, bumpy, scary and life altering experience that has taken away all the hard work by both my pediatric team and myself and left me helpless.
I am speaking in hopes that someone, somewhere, hears my story and as able to help fight the fight that is navigating our healthcare system and the support and resources doctors and nurse practioners truly need.
Disclosure information not submitted.
Tuesday, April 15, 2025
10:30 AM – 11:30 AM EDT